Beautiful Womanhood?

This is a girlie matter...so if your squeamish or uncomfortable don't continue. This Blog has become my journal in many ways so I post the feelings I have along with our family's experiences.

Alexis started her first real cycle last October and before she or I knew any better she had been going for 3 weeks. This poor girl didn't realize what was normal and wasn't. I on the other hand didn't realize how heavy it was. So when the two of us finally communicated what was going on I did all I could to help her. Six weeks into it, nothing had let up. I was trying everything to get it to stop-everything I knew wasn't helping. Finally I started asking around to the best and most respected naturalist that I have known. Everything they suggested wasn't working until I got to my Friend JoDean...she's never been wrong. By this time Alexis had been menstruating for 8 weeks. She was quite pale, week and anemic. She tested her for a clinic in Idaho. So I contacted the Doctor there for an over the phone consultation. He told me that he has helped hundreds of women with this very thing and to take a product called ovex. After a few days on this product the cycle stopped after 2.5 months of bleeding. It took a lot of effort to bring her energy level back up and I was left exhausted from the whole ordeal. The Doctor gave me a lab kit that is used to measure her hormone levels (clearly the reason she couldn't stop) However, this kit is to be used the 20th day after she started, which had come and gone by the time I started working with him.

So I have had to wait until the next cycle to evaluate her hormones and get a clear picture of what is going on; which didn't come until 7 months later. She started a cycle June 4. I thought, "okay, Ovex is available (to stop it) and the lab kit is ready to establish a treatment." So five days after her cycle began I started giving her the ovex (the soonest it can stop it) but it wasn't working. This product is 30 dollars a bottle. While it was reducing her flow it wasn't working to stop it. I called the Doctor in Idaho to ask him what he suggests. I left an urgent message to have him call me. He didn't. I called the next morning...still no return. This went on for a week and i finally told the Lady at the desk, "Yes, I am the annoying lady that keeps calling. However, my daughter is bleeding to death and I would really appreciate a call back from him as soon as possible." "oh" she says. "We couldn't find her in the system as a patient" "what does that have to do with anything?" I ask astounded. "He has been doing over the phone consultations with us." I couldn't believe this...really? How irritating. Meanwhile, I watch my daughter getting weaker and weaker; unable to help her. I felt I had been the rounds with my other friends and they all shrugged their shoulders. He was the only one with an answer, so I felt.
He called back right away (He really is a good man, my kind of perfectly balanced medical/traditional doctor-his clinic has won national awards etc.) He was speechless. He said, "I have never not had the ovex to work. The only other option you could do is birth control. It doesn't always stop it and it doesn't fix the problem. We really need to get that hormone kit in so I can formulate a treatment plan for her." With this our phone call ended and I had to wait the long and grueling 10 more days until the 20th day to do the lab kit. That anticipated day had finally arrived and we did the saliva kit to send in. I had arranged for UPS to come and pick it up...I had even paid them to do it. They usually come in the morning and by 2:00 I was nervous...they hadn't come yet. So I called, "Oh they will be out. They have until 7:00 pm" "ok" I said, " I just have a lab specimen that is time sensitive, It needs to go out today" "Don't worry, they'll be out" was her assured reply. 7:30 came and still nobody. I called the number and they said, "Oh, sorry they didn't pick it up. All of our drivers have gone home." "Do you realize I have a time sensitive lab kit that is crucial to get out? Now I am up against the weekend." I couldn't believe it-first the doctor didn't call me back for a week, now the UPS doesn't pick up this precious kit that had been waiting to be completed for 7 months. This holds in it the answer for my daughter, the cure, the end of her suffering. Meanwhile, I sit there helpless and her dependant and trusting. UPS offered no solution and so I aired it through the Post office to Oregon.
Next we had to wait the Long...LOOOONNNG 10 days to hear back the results...she's still bleeding. Ovex is slowing it down, but at 30 dollars a day. Finally the ovex gives up its medicinal effectiveness and she is bleeding heavy regardless. She doesn't have the energy anymore. Her once, 2-3 hours of music practice dwindles to 5 minutes. This brave girl keeps her chin up and her faith strong. She already missed Trek, of which I felt so angry about. I want my child to be a child and I want her to have all the experiences afforded to the youth. Yet, it was not to be so. Finally we get a call from the Doctor. Her progesterone levels are 55 when they should be 170...the reason for the everlasting period. He arranges a progesterone cream and i pay for it.
Meanwhile, I am getting ready for girls camp-I have been called to the YW and put in charge of camp. On the way there I call the Doctor, nearly a week later and the medicine has still not shown up. "Oh, we haven't mailed it yet" the receptionist confesses to me." "Please mail it, this poor girl is so weak and can't stop bleeding". At times like this you want to yell at them...your Character is tried. All I can do is maintain myself, try to remain a lady. We do girls camp and Alexis can't swim, hike or play like the other girls. She was pretty downhearted. I have her on all the iron, dessicated liver (in capsules) and chlorophyll (like a blood transfusion) She can manage. Every day I question, "How are you doing? How's your bleeding? How many pads today?" I am making her homemade bone broths as calcium clots the blood. I am giving her High Vitamin butter oil that has vitamins K1 and K2-which help in clotting. I am giving her cayenne pepper which is a healer...nothing is working, just maintaining her life. At camp I finally told my bishop what was going on and asked if he thought his wife, through her foot zoning would be able to help her. He modestly said she is a smart lady. I think he previously thought that she bailed on Trek and wimped out. It was a light bulb moment for him.
The night back from camp Alexis is in the bathroom, crying-for the first time. "All I can do is wait here to die, slowly bleeding to death, not able to do anything and be the girl I want to be. I have been faithful, I patiently waited, but he is not answering my prayer." This heart wrenching plea for help stabs me. I cry with her. I then ask Trevor to give her, yet another blessing. A fathers blessing. I am not going to assume that God is ignorant of our situation, nor can I ask him one more time to heal her...or rather, help me to heal her. All I am asking is for the comfort his daughter so needs. I tell her to keep the faith. That after the trial of our faith the miracle is wrought. The next morning I call the Bishop's wife. She works with Alexis and immediately her bleeding stops. For three days that is. Then it starts back up again. I feel as if an invisible murderer has gotten a hold of my daughter and is slowly killing her. I wake up in cold sweats at night fearful if she is still alive. In the morning I approach her room, quietly opening the door hoping to dismiss my worst fear by finding her well. The Bishop's wife assures me this is normal...the body can only process so much at once it takes a few times. So we go back to her. After the session this already feeble girl stands only to have more gushes of blood. I plead, "why? Why is it everyone that has experienced this can help their daughter or have helped many women/girls and all their suggestions, cures don't work for mine. Why am I being deprived of helping my daughter." So I do the unthinkable. I do what I never wanted to do. I take her into a female OBGYN, with no insurance and ready and willing to pay whatever it takes for the band aid. All this time I was looking for a cure a solution. Not a mask. The doctor assures me that this is normal. Her bleeding is normal and that this happens all the time to young girls. I beg to differ. This cannot be normal. She suggests birth control for 3 months, which I surprisingly willingly accept. She then looks at her and says, "she is pale, lets do blood work" She comes back with the results a little alarmed, "she is measuring a 6 which is half of what the body needs in blood level. This is cardiac risk, blood transfusion level, kidney failure level. Let's draw more blood to verify." I want to say, "Please, don't take any more blood from this girl." But I am in the Doctor's office and I succumb to the doctor's will. She verifies a little more than previously concluded and is relieved to not find her that bad off." I assure her that the things I am giving her changes her. When She doesn't take those, she could very well be close to that six. She is dizzy, can't walk, paler than a ghost and can't think. So Birth control is administered. The doctor warns me that it will affect her bones and put her at high risk for cancer...I know this. But what choice do I have? There is a chance she has Von Willebrand's disease. And Birth control may or may not regulate and fix this she notifies me.
I leave feeling bewildered, angry and forced. Why is it I can't help my daughter? Why did she suffer at my hand, when the only option was birth control? My pride is hurt. My purpose unclear. If I could go back to the beginning
and know that I would be forced into this I would have just done this in the beginning and eliminated the suffering. I was trying to finish the treatment from the doctor in Idaho. I was trying to trust him and all those that have experience with this condition. They all advice against birth control. 2 Weeks on the hormone cream didn't change anything in her. Maybe she needs it longer. Maybe I will give it to her so that she can build up a natural form of progesterone so while she is on birth control her levels will rise. And once she gets off hopefully this problem fixed.
Life is unsure, motherhood anything but dull. I have been told through blessings one day I will have an answer to all of this. In the meantime I contemplate.